Me and Charles Barkley

Friday, October 4, 2013



As in earlier posts, I want to preface this discussion by saying that I understand people’s hearts are in the right place. But sometimes the impact of their words on my head and my heart is not what one would anticipate it to be.

In 1993, NBA star Charles Barkley was scolded in the media for proclaiming that he was no one’s role model. Specifically, when he was asked by a reporter to atone for certain behavior off the court, Barkley responded:
"I'm not paid to be a role model. I'm paid to wreak havoc on the basketball court."

He later went on to immortalize this phrase in ads for Nike.

At the time, I disagreed with Barkley, and felt that his response was an easy way in which to justify his lack of self-control.  As the mother of a one-year-old son, I was especially attuned to the debate, wondering as I did who he would eventually choose for his role models.

Fast-forward twenty years, and I have a new understanding of Barkley’s frustration. Unlike Charles, however, I don’t feel I can go around demanding that people not view me as a role model. I tend to back away from the discussions and keep the frustration to myself. It wasn’t until a meeting of my widow’s group that I realized I was not alone in my discomfort with such conversations. 

These accolades usually come after I talk with someone about what has happened in the three years since my husband passed away. Yes, I finished my Master’s degree—something I promised my husband I would do. I sold my house and moved myself and my two children into a new home. Also because I committed to Kevin that I would, and it was too difficult and costly to stay. I purchased a condo for the time when my daughter and son have left our nest and I am completely on my own. I have kept my job and kept my children in school and extra-curricular activities. We love each other, we get along most days, and we keep moving forward together.

For this, I have been called strong, brave, courageous, gutsy, and even told I have “pluck.” I am honored that people see me in this way, but I don’t feel it is accurate or even appropriate. I certainly don’t see myself in this way at all. I am simply doing what I have to do in order to get through the day. Outwardly, I smile and am mildly deferential when offered this sentiment. But inside, I’m bristling.

I did many time-consuming, sometimes-healing projects in the aftermath of Kevin’s illness and passing. In looking back, they were most certainly done in order to honor Kevin’s memory. But they were also done as a way to keep me so busy that I never had time to grieve. And the more exhausted I was at the end of the day, the more likely I was to sleep through the night. They weren’t acts of bravery or strength; they were, more accurately, acts of defense or denial of my situation. It was me doing what I had to do to get through this time. None were acts of heroism or virtue, but instead, were simple, yet very tiring, acts of self-preservation. They fed my need to keep up the sense of diligence developed from three years of life with a cancer patient, or, as the writer Emily Rapp has called it, the “addiction to dread,” that caregivers begin to live for.

Add to this the fact that the "public me" is quite often not like the "private me" who still has bouts of crying, of angry yelling at the universe, and even the occasional kick of the dog (who somehow still comes back to me and kisses my face), and you can hopefully see how difficult it is to accept accolades.

A dear friend recently asked me what has been the hardest thing I’ve dealt with in the past three years. After thinking for only a minute, I answered more honestly than I previously had, and said, “facing and being alone with my grief.”  That is the truth. And that is not a sign of strength. To me, it seems much more a sign of weakness. 

I have another friend who is widowed, whom I greatly admire. She too, has maintained a career, family and household despite the loss of her soul mate—so many of us do. At the time of his sudden passing, she spent several weeks in bed, not answering calls or going out. 

Some might say she was being weak, not getting on with it; hiding under the covers rather than facing her grief.

But I believe the opposite to be true. She is my hero. She did face her grief, in all its debilitating, suffocating, energy-zapping, daylight-robbing heaviness. She faced it and lived in its midst for long, frightening days and longer nights. She did not put it aside, telling herself that she would deal with it another day.


In the midst of the Charles Barkley ruckus, fellow NBA player Karl Malone said the following:
“We don't choose to be role models, we are chosen. Our only choice is whether to be a good role model or a bad one." 

I suppose this is true of the widow that gets herself up and moving forward each day, although I certainly wouldn’t call myself “chosen.” More like “left-behind.” I’m in a life that, God knows, I didn’t ask, nor ever plan to be in. And I would give anything to have my old life back. But it is still difficult for me to take the acts of simply moving forward and declare them to be acts of bravery by those who observe them. Especially since I know that many of those who have classified me as a strong role model would behave in exactly the same way, and do it equally well, were they to be in a similar situation.

We each deal with grief in our own way, and no one way is better or more correct than another. As grievers we each, in our own way, try to make the best of this new role into which we’ve been thrust, even on those days when we feel, more than anything else, that it simply isn’t worth it. Call it strength, adaptability, or simply getting on with it, it’s just what we do.

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Signs

Sunday, September 22, 2013




I don’t know what happens when we die. My thoughts exist somewhere between the unshakable belief in an afterlife/Heaven of many of my family and friends, and that held by Kevin that once our brains stop thinking and our hearts stop beating, nothing more happens.

The feelings are complicated and involve faith, cultural mores, and now, experience. Shortly after Kevin’s death, I posted on his Carepages blog that I had received many “signs” of his presence and I chose to believe in them because Kevin’s spirit and soul--when they were here on earth, manifested in his body-- were so strong that they couldn’t possibly just end. I still believe that. I believe that love, a fierce desire to go on living, and a fate that ends that life too early, all make for an active afterlife.

Since Kevin’s passing, I have been visited by many signs. They bring me comfort and hope, not only for Kevin, but because this entire experience is nothing if not a daily reminder of my own mortality.

The morning after Kevin passed away, someone poured me a cup of coffee, which I took out to our front porch. It’s a large space, that porch. Our builder had to revise his cost estimate after he realized how big it would end up being; it was really an outdoor room. I sat on the porch where our family ate most dinners from May to October, and stared out into a void. Quite soon, a hummingbird ducked under the roof of the porch and came to me. It hovered just above my knee, as though preparing to drink nectar from the red flower on my pajama bottoms. I smiled. We had many hummingbirds around the yard, and Kevin would sit and watch them for long minutes. They battled over territory and a spot at the many feeders that Kevin and our daughter kept filled through the summer. I now have a hummingbird tatooed on my ankle and you'll notice a hummingbird on this blog.

A friend later told me that Native Americans believe hummingbirds carry the soul of the deceased to the afterlife. I’m ok with that.

I’ve had owls hoot as I sat in our hot tub, but they only come and make noise on special dates: our anniversary, my birthday.

In the year after Kevin’s passing, I saw fourteen shooting stars. Fourteen. In twelve months’ time. Whenever I would sink into despair about things done or not done, things left unsaid, or silly arguments I now wish we hadn’t had, I would ask Kevin to let me know that he was ok, that we were ok. Almost without fail, a star would shoot across the night sky. It brought a flood of tears, along with a sense of comfort that nothing else could bring.

Once, a snowy owl, maybe two-feet tall, landed in the road just in front of my car. I hit the brakes, the owl didn’t flinch.

It took a great deal of strength for me to venture into the garden that Kevin and I had worked so hard to maintain. I finally headed out one day, maybe a month after his death, and began pulling weeds, the act becoming a release for much of my pent-up anger and sadness. I cried the entire time I sat among the vegetables and flowers. Soon I noticed a hawk circling above me. My first thought was that an animal carcass must be nearby. But the hawk never lighted anywhere; it just kept circling and circling in the sky above my head, floating on the currents. I began talking to Kevin, giving sound to the angry, depressing thoughts, the unanswerable questions. Realizing that I couldn’t wipe my tears with muddy gloves, I gave up and returned to the empty house.

As I walked into our bedroom, a feather lay on the floor next to our bed. I wondered if the cat had somehow gotten out and the rest of the bird was under the bed. But no, no other sign of any wildlife was in the room that day, just a large, brown feather that I still have in my bedroom.
There have been other signs, too:  things gone missing that turn up in odd places, rainbows, a note that had never come to light despite three moves suddenly appeared in a room that we were clearing out to paint, as though it had been lying on the floor in that room for the past twenty years; the re-appearance of an old, deleted text message that showed up on my phone as I was delivering my Master’s thesis reading.

Some signs I plan to never tell, but to keep just between Kevin and me. There have been fewer in recent months, which causes me to wonder whether I was seeing what I wanted to see in the throes of grief. Or perhaps there is a settling of the soul in some place after which contact with the living lessens. I must live with the fact that I just don’t know. I know the strength of our love, our partnership. I know the force of his determination, and the strength of his wish to never be forgotten. I believe those things will continue to manifest themselves in my life. I hope they do.  They do not solve the mystery but they do ease the pain.

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Who I Am Without You

Friday, September 13, 2013




I came across this song a few weeks ago as it played in the background while I worked—making sense of monthly accounting spreadsheets as I remember. Every once in a while I’ll be half-listening to a song and quickly realize that it deserves closer attention. A word or two will catch my attention the way a glint of sunlight hits a piece of glass in your path and makes you stop and look. This was one of those songs. Off I went to Google the band and find a video.



The words that struck me were these:
“I’m so scared of losing you and I don’t know what I can do about it, about it.
So tell me how long, love, before you go
And leave me here on my own?
I know that I don't wanna know who I am without you.”

Sure, it’s a break-up song, but the beauty of a really good song is that you can make it work for your situation, even if it wasn’t written for that reason.

Last Saturday marked the third anniversary of Kevin’s passing—a length of time that I still can’t comprehend. For twenty-seven years we had not been apart from each other for more than ten days’ time. I feel memories fade ever so slightly each year and I fear I need to make time stop before they fade away completely. I grasp at them each day with greater urgency.

Having been married for twenty-seven years, and marrying as we did in our early twenties, the last three years have indeed been a search to find out who I am without him. In so many ways, Kevin and I grew up together, our adult lives becoming completely interwoven. Our courtship lasted less than two years and was a bit tumultuous. We met when we both worked at the Hyatt Regency Hotel and I invited Kevin’s roommate Bob to a party I was having at my parents’ house while they were out of town.

Thinking back on that party, it really is a metaphor for the scattered, indecisive way in which I’ve lived my life all these years since—too often going with the flow, dabbling in this and that, never quite able to confidently define myself in any fixed way. Kevin and Bob were part of a group from my new job. They were a fairly hardworking bunch, though not necessarily studious. Some were in college; others were going to work at the hotel forever.

Then there was a young man I had dated a bit through the winter. Tommy played in a punk rock band, had several piercings, wore a spiked leather wristband, and was in love with Chrissie Hynde of the Pretenders. I had a few earrings dangling from my ear, wore ripped jeans and listened to The Clash. Music defined much of my youth, and my dream was to write about music. Tommy showed up in his hot-rod car, which most of my peers did in Detroit in 1982. He was good looking, fun and destined to a middle class life of factory work.

Then there was Steve. He was finishing his MFA in photography. He was artsy and creative, and eight years older than I. He was absolutely dedicated to his craft—fame and fortune or even steady income be damned. We read Patti Smith's poetry aloud and dreamed of tiny apartments in Manhattan. Steve represented the Bohemian creative-type that I yearned to be on certain days. But at what cost? I had grown up in a working-class neighborhood in Detroit, but both my parents worked, which made our situation a bit more secure—not wealthy, just comfortable enough to all go to college, have nice clothes and dinner out if we wanted to. It was expected that I would work to have a better life than my parents. Forsaking that for the life of a starving artist was not something I felt comfortable explaining to my parents or necessarily choosing for myself.

There was no instant spark that first time Kevin and I met. But we encountered each other at work and at after-work get-togethers enough that we found we had much in common. Soon we were planning our work breaks together, going out nearly every night after work and finding ways to connect momentarily on the campus where we both took classes.

We broke up a few times (too long a story to explain here), and I went away to school . During that time, I changed majors and even changed schools--twice. I went from studying literature to marketing—trading in time spent writing poetry for writing advertising copy. As Kevin and I planned our wedding, I felt the need to give up the dream of being a poor poet and plan for a corporate future that would afford a nice house, cars, and annual vacations.

My life was further defined by the home we purchased and renovated, and then as the mother of two children. I was absorbed into the day-to-day of my life like a chameleon on colored paper, until I didn’t really know where others’ lives stopped and mine began. I am not alone in this, for certain.

And Kevin was more supportive than most in encouraging me to pursue my interests. He read most everything I wrote, and was one of only a few people with whom I shared essays, stories and even my crappy teen-angst poetry. He, too, worried that the creative person he married was getting lost in our busy lives, but neither of us knew how to do the hard work of carving out the time and space I needed. Like many women, I struggled to fully nourish my creative interests without feeling guilty about taking time away from my family, job, home, etc., etc.

And though I may have wished for that life of a writer, I also must admit that I took full advantage of the comforts of our (mostly Kevin's) hard work. Such was the conflict I had all those years--who is the real Lori: if you want to be a struggling writer who lives solely on her earnings, go be one, but you'll need to leave your Amex card behind.

Now, my children are mostly grown and self-sufficient, I’ve sold the house, I am no longer a wife, or even someone’s child, as my parents have also both passed away.

It is scary to be finding out “who I am without you.” At my least rational times I even wonder if I brought this situation on myself after wishing sometimes to be on my own with a laptop and no other responsibilities.

I am of course, the sum of all these things—wife, mother, daughter, sister, aunt, niece, gardener, cook, friend, caregiver, and writer. I see myself made of my experiences in each of these roles as though they create the very cells that make my flesh and blood. In the best sense, they even inform and give life to my writing.

And now I must decide what Lori 2.0 will be. It is, at times, exhilarating, frightening, and grief-inducing. It is something I must do on my own, not only because that’s probably the best way, but also because I don’t have much choice. I don’t know exactly how things will work out, but I’m determined to be more present in making decisions about my life. I want to spend more time on shore, checking out the surroundings, rather than allowing myself to just be carried by the current. I owe this to myself, but also to Kevin, and his memory.


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So Many Anomalies

Friday, July 26, 2013

“To be scared is one thing; anxiety is another one. ... If you are in a battle and you have bombs and bullets and shrapnel and everything is going up in the air, that's why you can be scared. But it doesn't really compare to the anxiety. You see, the anxiety ... is something much deeper in a way, because it sticks to you all the time. Are we going to make another day? Are we going to be arrested? ... It's all the impending menace, you know, all the time, all the time. And that's anxiety. I find anxiety worse than fear."

-Tomi Ungerer, author and illustrator of over 140 books for children and adults

I listened to this interview a few weeks back with author and illustrator Tomi Ungerer because I’d read his books and remembered his illustrations, especially those in collaborations with his lifelong friend, Maurice Sendak. I didn’t think I would find a portion of the interview so compelling and relevant that I would pull off the road and listen even more closely. 

As a child, I remember periods of being afraid of the dark, afraid to open the closet doors; the typical childhood fears, I suppose. But as I grew into adulthood, my fear shifted toward anxiety. This too is perhaps not so unusual. Grownups know what is real to be feared, and what isn’t. So we no longer fear that which we know doesn’t exist, but shift toward fearing what we can’t control. According to Ungerer, this is anxiety.

Ungerer is talking about his childhood during World War II, when he lived in the Alsace region of Germany. But he could be referring to other things as well. Our two-plus years spent trying to rid Kevin’s body of cancer was wartime for us, in most every sense. It came with its own “bombs and bullets and shrapnel.” It was a time of constant battle. Nearly every night, especially after Kevin’s Stage IV diagnosis on November 13, 2009, despite being completely exhausted both physically and mentally, I would lie in bed and think, “I cannot take time to sleep. There isn’t time to sleep. Every minute I am sleeping is a minute I am not saving my husband.” That was a time to be scared.

And yet, just as there was not time for sleep, there was also not time for reflection on the situation. We just continued to fight. And so I know a little about Ungerer’s fear caused by everything “going up in the air.”

But it’s his analysis of anxiety that stopped me in my tracks.


Tomi Ungerer's 1967 book Moon Man follows its lonely protagonist as he visits Earth for the very first time. c Tomi Ungerer

In the past two and a half years, I know that I have become a much more anxious person. Hearing Ungerer’s definition of this state was so right on, so close to my own recent feelings and experiences, it was as though someone understood my feelings for the very first time.

During Kevin’s first round of treatment, a dear friend who is a cancer survivor told us that it would take several years before Kevin felt confident of his health. Indeed this was true. Even after his first post-treatment, six-month appointment where he was declared cancer-free, he continued to be extremely watchful of every change in his body. When the cancer returned, giving him terrible headaches that didn’t respond to the usual Tylenol, he knew something was wrong, despite doctors who said that his type of cancer didn’t metastasize to the brain. 

Many people now, in offering condolences, or checking up on how I’m doing, make statements about how much I, more than most, understand that life is short, that every day counts. Yes, it’s true that I do. But there’s a double edge to that knowledge. Understanding that life is so unpredictable can motivate you to approach it with fervor, or it can paralyze you into taking no chances at all.

Since Kevin’s passing, I have had my own health issues. Usually they are nothing. Does this come from my own lack of confidence in health? Or is it a better understanding of the capriciousness of good health. Either way, every cough, headache, muscle ache, or stomach discomfort, sends me to a place of near panic and high anxiety.

I think sometimes it is hard for family and friends to understand this. Even medical professionals tend to give me funny looks. When I questioned another friend who lost her young son to a brain tumor, as to whether she was anxious of her own health, she said no, she saw her son as an anomaly. 

Unfortunately, I have lost my husband, along with three close friends (plus three spouses in my grief group), all in the past three years, to unusual cancers that couldn’t be explained. All four, including Kevin, were young, healthy, non-smokers, exercisers, who ate well and had no family history of cancer.

My world seems so full of anomalies that they’ve become common place.

And it is not just health, but other situations as well, where things can appear fine one day, and off the next, as though so much depends on the stars aligning just right, or finding a four-leaf clover in the grass. What will happen if…fill in the blank: I lose my job, someone gets my credit card and drains my savings account, we are in an accident, our house burns down. Like Ungerer’s questions of “are we going to make another day, are we going to be arrested,” there is no reason to believe these things will happen, they have not already happened, but the fear of them, the impending menace as Ungerer refers to it, is enough to tense my shoulders into hardened clay, put my stomach into knots, and me back into bed for a day.

The only cure for this is time and understanding, I know. But it does seem to be, in varying degrees, part and parcel of the widow’s life. A partner is by your side and healthy one day, and gone the next, whether from cancer, a heart attack caused by an undetected heart ailment, an aneurism, or a speeding car that ran a red light. 

Our lives cannot be consumed by anxiety--a feeling worse than fear because it is fear of the unknown, the improbable, and that which can’t really be controlled. Most days, I feel as though I am holding that double-edged sword: living life to the fullest on one side, or being consumed by fear on the other. I am physically challenged by its very weight. Each day, I approach it, gather my strength to lift it and determine to put it on its right side. Even after almost three years, this is a daily and difficult task.

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