Showing posts with label Health. Show all posts

Looking for Sanctuary

Sunday, October 13, 2013



Purple wildflowers, bushy tigerlillies and a few untamed roses fill the memorial garden of our church. Kevin’s ashes are buried there in a beautiful paper packet that will, over time, become earth. The building, grounds and people of our church were all important to Kevin. He loved attending services, participating in the men’s group, organizing the annual Men’s Retreat, and working with church youth as a religious ed teacher and advisor. We only began attending church about three years before his illness was diagnosed. We had struggled to find where we fit in, but felt strongly that we wanted a place for our children to learn about values from people other than us.
First Unitarian Universalist of Ann Arbor is a welcoming, active community of liberal thinkers like us. Kevin felt more at home there than anywhere else other than, well, home. We made deep and rich friendships. The congregation went into action when Kevin’s diagnosis became public—cooking meals, caring for our kids, driving Kevin to treatment, sending notes of encouragement. Our ministers took wonderful care of our family. Our Associate Minister, the late Nancy Shaffer, had barely unpacked the boxes in her new home, having just moved to Ann Arbor from Illinois, before she was at our house inquiring about Kevin’s first surgery and impending treatment plan. Subsequently, she was at multiple chemo treatments, came to our house to talk about diagnoses, and sat with our family during every surgery, both planned and emergency. The Pastoral Care committee went into action with meals, cards and other thoughtful efforts.
After Kevin passed away, we had only a few days to plan his memorial service. He made notes on his laptop, but never discussed with me what I should do if he didn’t make it. I went through pages of writing and found that he wished to be cremated, have his remains spread at his dad’s grave, my dad’s grave, my Uncle GW’s grave, and at his favorite running place. The remainder would be buried in the UU memorial garden.  What I remember of his service was as good as it could be. It was full of music, reminiscences and tears, and over 200 people that loved Kevin.
But that experience also marked that church and that sanctuary forever as the last place I ever was with Kevin, unable to see him or touch him.
I took a few weeks off from attending services. But I knew that I would eventually need to return. Our daughter loved her religious education classes, we both have many friends there, and there is rarely a sermon that doesn’t speak to me in a meaningful way.
But the first time I walked into the sanctuary, I felt my knees buckle and the breath leave my lungs. I found a seat closest to the door and glued myself to it. I kept my eyes on my shoes. Of course, I was greeted by many, including our Senior Minister Gail Geisenhainer, who also greatly impacted our lives during Kevin’s illness. She understood what it meant for me to be there and thanked me for my bravery. At the time I shrugged it off, saying I was fine, because I didn’t realize myself how hard it was going to be to walk through those doors.
I had never anticipated having this reaction. We have spoken about it in my widow’s group and it is a painful thing. Quite often one’s church is the place for solace and good memories of baptisms and weddings. It is the place we turn to in an effort to be closer to answers. It is a place to solidify our faith and beliefs.
But that all goes away after having a loved one’s funeral in that building. At least it did for several of us. I was surprised by how many in our group had been lectured by their ministers over having any negative feelings about attending church. It would be better, I think, if these ministers understood that much about grieving can’t be understood, planned or willed away. We don’t ask for any of the feelings that overcome us, and seemingly have no control over when and where they happen. Patience is far more helpful than any lecture. Losing our connection to a congregation or the peace of being in a sanctuary is yet another unfair loss for us. 

I remember shortly before Kevin’s last surgery—his back was in such pain that we had to take a cloth folding chair to church so he could sit through the service. In front of us was a woman who had lost her husband to cancer just 2-3 years before. As we stood and began singing a rousing gospel hymn, I noticed her swaying, clapping and smiling. I wondered just then, if Kevin didn’t make it, how long it would be before I could be anywhere, but especially back in this place, acting that happy. I put that thought, like any that had to do with the possibility of death, out of my mind.
I didn’t realize at that time, how difficult it would be to find happiness in that place, even when small bits of happy began creeping back into my life. It is now also the place where I last saw Reverend Nancy before she returned to her hometown of Davis, California, to surround herself with family as she succumbed to brain cancer. I also attended the memorial service for my friend Brenda. I understand that death and memorializing are important functions of a church’s purpose, but on some days it seems to be the only thing. I now attend church nearly every week, though most Sundays it’s still not easy.


There have been other peculiarities of grieving as well, things that those who've not experienced it might find strange. We find our lives are different in the way we think or act and realize it's just another way in which we've lost more than just our loved one.  I could do an entire post on irrational ways I’ve thought, or the strange out-of-body experiences I’ve had. For some unknown reason (that I’ve hypothesized but not solved) it was very difficult for me to tolerate the touch of another person—I bristled at hugs, hand squeezes or even accidental bumps in crowded rooms, in the months just after Kevin's death. The idiosyncrasies of grief—the odd ways in which it manifests itself in each individual, are not understood by scientists, much less those who experience them.  All we can do is get through the emotional and physiological changes that grief brings and hope that our families, friends and ministers are waiting when we do.
 

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So Many Anomalies

Friday, July 26, 2013

“To be scared is one thing; anxiety is another one. ... If you are in a battle and you have bombs and bullets and shrapnel and everything is going up in the air, that's why you can be scared. But it doesn't really compare to the anxiety. You see, the anxiety ... is something much deeper in a way, because it sticks to you all the time. Are we going to make another day? Are we going to be arrested? ... It's all the impending menace, you know, all the time, all the time. And that's anxiety. I find anxiety worse than fear."

-Tomi Ungerer, author and illustrator of over 140 books for children and adults

I listened to this interview a few weeks back with author and illustrator Tomi Ungerer because I’d read his books and remembered his illustrations, especially those in collaborations with his lifelong friend, Maurice Sendak. I didn’t think I would find a portion of the interview so compelling and relevant that I would pull off the road and listen even more closely. 

As a child, I remember periods of being afraid of the dark, afraid to open the closet doors; the typical childhood fears, I suppose. But as I grew into adulthood, my fear shifted toward anxiety. This too is perhaps not so unusual. Grownups know what is real to be feared, and what isn’t. So we no longer fear that which we know doesn’t exist, but shift toward fearing what we can’t control. According to Ungerer, this is anxiety.

Ungerer is talking about his childhood during World War II, when he lived in the Alsace region of Germany. But he could be referring to other things as well. Our two-plus years spent trying to rid Kevin’s body of cancer was wartime for us, in most every sense. It came with its own “bombs and bullets and shrapnel.” It was a time of constant battle. Nearly every night, especially after Kevin’s Stage IV diagnosis on November 13, 2009, despite being completely exhausted both physically and mentally, I would lie in bed and think, “I cannot take time to sleep. There isn’t time to sleep. Every minute I am sleeping is a minute I am not saving my husband.” That was a time to be scared.

And yet, just as there was not time for sleep, there was also not time for reflection on the situation. We just continued to fight. And so I know a little about Ungerer’s fear caused by everything “going up in the air.”

But it’s his analysis of anxiety that stopped me in my tracks.


Tomi Ungerer's 1967 book Moon Man follows its lonely protagonist as he visits Earth for the very first time. c Tomi Ungerer

In the past two and a half years, I know that I have become a much more anxious person. Hearing Ungerer’s definition of this state was so right on, so close to my own recent feelings and experiences, it was as though someone understood my feelings for the very first time.

During Kevin’s first round of treatment, a dear friend who is a cancer survivor told us that it would take several years before Kevin felt confident of his health. Indeed this was true. Even after his first post-treatment, six-month appointment where he was declared cancer-free, he continued to be extremely watchful of every change in his body. When the cancer returned, giving him terrible headaches that didn’t respond to the usual Tylenol, he knew something was wrong, despite doctors who said that his type of cancer didn’t metastasize to the brain. 

Many people now, in offering condolences, or checking up on how I’m doing, make statements about how much I, more than most, understand that life is short, that every day counts. Yes, it’s true that I do. But there’s a double edge to that knowledge. Understanding that life is so unpredictable can motivate you to approach it with fervor, or it can paralyze you into taking no chances at all.

Since Kevin’s passing, I have had my own health issues. Usually they are nothing. Does this come from my own lack of confidence in health? Or is it a better understanding of the capriciousness of good health. Either way, every cough, headache, muscle ache, or stomach discomfort, sends me to a place of near panic and high anxiety.

I think sometimes it is hard for family and friends to understand this. Even medical professionals tend to give me funny looks. When I questioned another friend who lost her young son to a brain tumor, as to whether she was anxious of her own health, she said no, she saw her son as an anomaly. 

Unfortunately, I have lost my husband, along with three close friends (plus three spouses in my grief group), all in the past three years, to unusual cancers that couldn’t be explained. All four, including Kevin, were young, healthy, non-smokers, exercisers, who ate well and had no family history of cancer.

My world seems so full of anomalies that they’ve become common place.

And it is not just health, but other situations as well, where things can appear fine one day, and off the next, as though so much depends on the stars aligning just right, or finding a four-leaf clover in the grass. What will happen if…fill in the blank: I lose my job, someone gets my credit card and drains my savings account, we are in an accident, our house burns down. Like Ungerer’s questions of “are we going to make another day, are we going to be arrested,” there is no reason to believe these things will happen, they have not already happened, but the fear of them, the impending menace as Ungerer refers to it, is enough to tense my shoulders into hardened clay, put my stomach into knots, and me back into bed for a day.

The only cure for this is time and understanding, I know. But it does seem to be, in varying degrees, part and parcel of the widow’s life. A partner is by your side and healthy one day, and gone the next, whether from cancer, a heart attack caused by an undetected heart ailment, an aneurism, or a speeding car that ran a red light. 

Our lives cannot be consumed by anxiety--a feeling worse than fear because it is fear of the unknown, the improbable, and that which can’t really be controlled. Most days, I feel as though I am holding that double-edged sword: living life to the fullest on one side, or being consumed by fear on the other. I am physically challenged by its very weight. Each day, I approach it, gather my strength to lift it and determine to put it on its right side. Even after almost three years, this is a daily and difficult task.

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